One in 18,000 people in the UK have Williams Syndrome.
Williams Syndrome is a micro-deletion of genetic material from a specific region of chromosome 7.
Only one in 30 GPs will ever see a patient with Williams Syndrome.
How we can help
The WSF is on hand to offer help and support to families, carers and people with WS.
The Foundation arranges and subsidises group respite breaks for WS adults and families.
However you choose to fundraise, we are here to help and support you every step of the way.
Watch nowMathew Baynton sets out to raise awareness of Williams Syndrome.
Latest News
This month is all about raising awareness of Williams Syndrome and the Williams Syndrome Foundation – we will be shining a light on the achievements people with Williams Syndrome can make with the right help and support and raising awareness for the whole month of May alongside you! Find out how you can get involved.
Our 100k in May fundraising challenge is back and we want you to take part!
Take on our fundraising campaign ‘100k in May – Your Way’ for WS.
You could run 3km a day, ride 30km each weekend, swim before work or walk the kids to and from school, all we ask is that you reach 100km during May. Click here to find out more.
All our members should have recieved their copy (online or print) of the Spring 2026 issue of the WSF magazine ‘Talk to Me’.
If you haven’t yet received yours, please email: