Publications
Williams Syndrome Health Surveillance
This leaflet has been produced by the Williams Syndrome Foundation for family doctors: it is very comprehensive and therefore covers all possible features of Williams Syndrome. Each person with Williams Syndrome will demonstrate some of' these features but not all of them. Even the rarest possibilities have been included to enable your doctor to manage your child's health efficiently.Health Surveillance
Download PDF 
Dental Advice
for Williams Syndrome Children
DENTAL PROBLEMS ASSOCIATED WITH WILLIAMS SYNDROMEMany children find difficulty in coping with routine dental treatment. This not only depends on the severity of their mental disability but also the degree of hyperacusis. Many children find the high-pitched noise of the drill a problem. In addition, many children have cardiac anomalies which require antibiotic cover prior to treatment, and also means that they are more 'at risk' of complications associated with dental disease. More in the downloadable PDF.
Dental Advice Download PDF
Guidelines for Parents -
Children with Williams Syndrome
by Dr Orlee Udwin and Professor William YuleForward
Williams Syndrome (WS) is a rare condition, occurring in approximately 1 in 20,000 live births. As a result, most people will not have encountered a child with WS before, and they will understandably know little, if anything, about the characteristics and difficulties associated with the condition. The purpose of this booklet is to provide information about this rare disorder, and to outline the difficulties that may be experienced by children with WS. Of course every individual is different, and not everyone with WS will show all of the characteristics and difficulties described below. The contents of this booklet are based on research undertaken over the last decade, which demonstrates that WS is associated with a number of distinctive behavioural and psychological features, which differentiate children with this condition from others with learning difficulties. It is hoped that this information and the advice and suggestions that follow will be of benefit to the families of children with WS. A separate information booklet for teachers is available from the Williams Syndrome Foundation, and families may choose to forward that booklet to their child's school.
Guide for Parents
Download PDF 
Guidelines for Teachers -
Children with Williams Syndrome
by Dr Orlee Udwin and Professor William YuleForeword
Williams Syndrome (WS) is a rare condition, occurring in approximately 1 in 20,000 live births. As a result, most professionals will not have encountered a child with WS before, and they will understandably know little, if anything, about the characteristics and difficulties associated with the condition. The purpose of this booklet is to provide teachers with information about this rare disorder, and to elaborate on the special learning difficulties and needs of affected children.
The contents are based on research undertaken by the authors and others over the last decade, which demonstrates that WS is associated with a number of distinctive behavioural and psychological features which differentiate children with this condition from others with learning difficulties. Of course every child is different, and not everyone with WS will show all of the characteristics and difficulties described here. Nevertheless, it is hoped that this information and the advice and suggestions that follow will be of benefit to teachers, learning support assistants and others who work with children with the condition. A separate information booklet for parents is available from the Williams Syndrome Foundation.
Guide for Teachers Download PDF
Guidelines for Families & Professionals -
Adults with Williams Syndrome
by Dr. Orlee Udwin, Dr.Patricia Howlin and Mark DaviesForward
Williams Syndrome (WS) is a rare condition, occurring in approximately 1 in 20,000 live births. As a result, most people will not have encountered an individual with WS before, and they will understandably know little, if anything, about the characteristics and difficulties associated with this condition. The purpose of this booklet is to provide information about this rare disorder, and to outline the difficulties that may be experienced by adults with WS. Of course every individual is different, and not everyone with WS shows all of the characteristics and difficulties described below. The contents of this booklet are based on research undertaken over the last few years, and, in particular, on a study of the daily lives and adjustment difficulties of 70 adults with Williams Syndrome carried out in 1994/5. This research demonstrates that WS is associated with a number of distinctive behavioural and psychological features, which differentiate individuals with this condition from other groups of adults with learning difficulties. These characteristics, and their implications for the supported management of adults with WS, are discussed in detail throughout this booklet. It is hoped that the advice and suggestions that follow will be of benefit to those who live and work with adults with WS. A separate information sheet for employers and work supervisors can be obtained from the WS Foundation, and families may choose to forward that document to potential employers and supervisors who may not have time to read this more detailed booklet.
Guide for Families Families
Download PDF 
Guidelines for Employers -
Adults with Williams Syndrome
by Dr. Orlee Udwin, Dr. Patricia Howlin and Mark DaviesWhat is Williams Syndrome?
Williams Syndrome (WS) is a rare, genetically determined condition occurring in approximately 1 in 20,000 live births. It is associated with a number of distinctive physical, behavioural and psychological features which differentiate affected individuals from other adults with learning difficulties. More in downloadable PDF.
Guide for Employers Download PDF
