One in 18,000 people in the UK have Williams Syndrome.
Williams Syndrome is a micro-deletion of genetic material from a specific region of chromosome 7.
Only one in 30 GPs will ever see a patient with Williams Syndrome.
How we can help
The WSF is on hand to offer help and support to families, carers and people with WS.
The Foundation arranges and subsidises group respite breaks for WS adults and families.
However you choose to fundraise, we are here to help and support you every step of the way.
Watch nowMathew Baynton sets out to raise awareness of Williams Syndrome.
Latest News
We’re delighted to have partnered with Run for Charity to bring you access to an incredible range of sponsored events, giving you the opportunity to challenge yourself, have fun, and raise vital funds for the WSF at the same time!
Sign up online and get in touch – we would love you to share your journey from fundraising to the finish line, supporting you in any way we can!
We are planning the Winter 2026 issue of our magazine ‘Talk to Me’ and we want to hear from you! As well as your news, achievements, and fundraising events we are always on the lookout for people to share their personal experience stories with us. And as always, we would also like your best (high res!) pics to use on the front and back cover. Email: mag@williams-syndrome.org.uk
Deadline for entries: 1st September 2026
From t-shirts to keyrings, hoodies to bags – there’s something for everyone.
When you shop with us, the profit from your purchase will fund essential support for people affected by Williams Syndrome.