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Williams Syndrome Guestbook
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Number of entries: 72 Number of pages: 8
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Number of entries: 72 Number of pages: 8
« First ‹ Prev 1 2 3 4 5 6 7 8 Next › Last »
Comments:
i have a beautiful son who has williams syndrome but hes so loveing and i wouldent change him for the world.
i have a beautiful son who has williams syndrome but hes so loveing and i wouldent change him for the world.
Added: November 13, 2009
Comments:
I have a 16 month old daughter with williams syndrome. She has just been diagnosed.
She is terrible at sleeping and wakes frequently.
Does anyone have any tips??
I have a 16 month old daughter with williams syndrome. She has just been diagnosed.
She is terrible at sleeping and wakes frequently.
Does anyone have any tips??
Added: October 19, 2009
Submitted by
Name: Jean, Brian, Ben & Nick Fish
From: Darwen, Lancashire
E-mail: jean_fish@hotmail.co.uk
Name: Jean, Brian, Ben & Nick Fish
From: Darwen, Lancashire
E-mail: jean_fish@hotmail.co.uk
Comments:
We are proud to be associated with the Williams Syndrome Foundation. We have a gorgeous great niece called Sophie. She is 20 months old and we love her dearly. We will support the Foundation whenever we can.
We are proud to be associated with the Williams Syndrome Foundation. We have a gorgeous great niece called Sophie. She is 20 months old and we love her dearly. We will support the Foundation whenever we can.
Added: October 11, 2009
Comments:
Our 13 year old son has WS. Recently he has been stiffening his body and standing very rigid for approx 5 seconds, but for no apparent reason. He has had an ultra scan, but nothing has been discovered that may explain this behaviour, and he is now to have another hospital appointment to try and find if there is a medical reason, possibly connected to his bowel, as to why he may be behaving like this.
Has anybody else had a similar experience with their child?
Has anybody heard of this before, if so, what was the outcome?
Any info at all would be appreciated.
Thanks.
Admin reply: Please advise me of your full email address so I can help you. You can email me at john.nelson-wsfoundation@btinternet.com Hope to hear from you soon John Nelson, Williams Syndrome Foundation
Our 13 year old son has WS. Recently he has been stiffening his body and standing very rigid for approx 5 seconds, but for no apparent reason. He has had an ultra scan, but nothing has been discovered that may explain this behaviour, and he is now to have another hospital appointment to try and find if there is a medical reason, possibly connected to his bowel, as to why he may be behaving like this.
Has anybody else had a similar experience with their child?
Has anybody heard of this before, if so, what was the outcome?
Any info at all would be appreciated.
Thanks.
Admin reply: Please advise me of your full email address so I can help you. You can email me at john.nelson-wsfoundation@btinternet.com Hope to hear from you soon John Nelson, Williams Syndrome Foundation
Added: September 29, 2009
Submitted by
Name: Carla jones an.my.girls
From: Liverpool
Name: Carla jones an.my.girls
From: Liverpool
Comments:
My daughter has williams but she is so clever an independent she is also a twin
My daughter has williams but she is so clever an independent she is also a twin
Added: September 27, 2009
Comments:
working with young man who has williams syndrome, its a privilege and a pleasure even with the mood swings!!!
working with young man who has williams syndrome, its a privilege and a pleasure even with the mood swings!!!
Added: August 3, 2009
Comments:
HELLO
MY NAME IS SHELL AND I AM 31 YEARS OF AGE.
I HAVE A SISTER AGED 33 WITH WILLIAMS SYNDROME.
I WOULD BE HAPPY TO ANSWER ANY E - MAILS BUT WOULD PARTICULARLY APPRECIATE ANY FROM FELOW SIBLINGS SUCH AS MYSELF.
MANY THANKS X
HELLO
MY NAME IS SHELL AND I AM 31 YEARS OF AGE.
I HAVE A SISTER AGED 33 WITH WILLIAMS SYNDROME.
I WOULD BE HAPPY TO ANSWER ANY E - MAILS BUT WOULD PARTICULARLY APPRECIATE ANY FROM FELOW SIBLINGS SUCH AS MYSELF.
MANY THANKS X
Added: July 22, 2009
Comments:
Hi, I am the mum of a WS daughter who is now 7. We have had real problems with feeding since about 9 months but are gradually improving. I was determined to avoid tube feeding so we tried any other method of encouraging her to take calories, it took 2 years for her to feed from a spoon without gagging at the sight of it but now eats well of a few different things.
Lauren attended mainstream nursery but goes to a special needs school which she loves.
We were lucky in so much as she was diagnosed at 9weeks and so has been "in the system" from the word go. We have had lots of help and her statmenting went very smoothly thanks to portage and preschool teachers. She goes to brownies, gym club and horseriding and enjoys music. Please get in touch, especially if local, as always good to meet other parents.
Hi, I am the mum of a WS daughter who is now 7. We have had real problems with feeding since about 9 months but are gradually improving. I was determined to avoid tube feeding so we tried any other method of encouraging her to take calories, it took 2 years for her to feed from a spoon without gagging at the sight of it but now eats well of a few different things.
Lauren attended mainstream nursery but goes to a special needs school which she loves.
We were lucky in so much as she was diagnosed at 9weeks and so has been "in the system" from the word go. We have had lots of help and her statmenting went very smoothly thanks to portage and preschool teachers. She goes to brownies, gym club and horseriding and enjoys music. Please get in touch, especially if local, as always good to meet other parents.
Added: July 19, 2009
Comments:
hi,i have a son of 5yrs that has ws. i found out about his syndrome when he was 2yrs. he leaves his nursery on tues for the summer hoidays and starts his disability school in sep.
its taken me so long to write something on here, yrs even but never new what to say, well iv found my voice. iv just read my sons nursery end of yr report from the teacher that has been with him all the way over these 2yrs and wow!!! im so so so proud of him, hes atchieved so much and my fears for him starting a new school has so gone because i no he will excell in everything he puts his mind to...(tears in eyes) hes a lovin, caring little boy, the good time over weigh the bad and i WOULDN'T change him for the world!!xxx
hi,i have a son of 5yrs that has ws. i found out about his syndrome when he was 2yrs. he leaves his nursery on tues for the summer hoidays and starts his disability school in sep.
its taken me so long to write something on here, yrs even but never new what to say, well iv found my voice. iv just read my sons nursery end of yr report from the teacher that has been with him all the way over these 2yrs and wow!!! im so so so proud of him, hes atchieved so much and my fears for him starting a new school has so gone because i no he will excell in everything he puts his mind to...(tears in eyes) hes a lovin, caring little boy, the good time over weigh the bad and i WOULDN'T change him for the world!!xxx
Added: July 17, 2009
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Name: Maggie Dyson
From: Wiltshire
E-mail: maggie.dyson@btintenet.com
Hi There, My WS daughter, age 34, is having trouble with her teeth. She is being treated for gum disease, which has made her front teeth a bit insecure, but has tripped and bashed her face causing further trauma to the teeth which are now very wobbly. Her dentist is not sure we can save them, at the monment they're wired together to give them a bit more stability, but the thought of what might happen next is rather daunting.
Is there anyone out there who has had experience of major dental treatment for someone with WS? I'd be grateful if you could get in touch.
Aside from the dental issues, my daughter is doing very well, living independently & getting a great deal out of life.