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Williams Syndrome Guestbook
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Number of entries: 100 Number of pages: 10
1 2 3 4 5 6 Next › Last »
Number of entries: 100 Number of pages: 10
1 2 3 4 5 6 Next › Last »
Comments:
Hi there my daughter Emily has just been diagnosed with W/S today, I would love to speak to other families with children who have W/S, I have been given leaflets and my mind is boggled with information that i dont understand any help would be great!!!! Thank you!!!!
Hi there my daughter Emily has just been diagnosed with W/S today, I would love to speak to other families with children who have W/S, I have been given leaflets and my mind is boggled with information that i dont understand any help would be great!!!! Thank you!!!!
Added: January 18, 2012
Comments:
Hi there, I am mum to a 5 year old boy with Williams, was just wondering if there is anyone else in Cornwall with WS or with children with WS who would like to e-mail, write or even meet up. At some point we will travel to London for the picnic but as yet he is not the best traveler so any local contact would be great.
Background; diagnosed at 16 months, currently in mainstream with statement. In his words 'I would like to meet some of my friend who look like me!'
Thanks.
Hi there, I am mum to a 5 year old boy with Williams, was just wondering if there is anyone else in Cornwall with WS or with children with WS who would like to e-mail, write or even meet up. At some point we will travel to London for the picnic but as yet he is not the best traveler so any local contact would be great.
Background; diagnosed at 16 months, currently in mainstream with statement. In his words 'I would like to meet some of my friend who look like me!'
Added: September 17, 2011
Comments:
Hey everyone my daughter is 5 n half and has WS and im having no luck potty training her, she seems too big for a potty but is too frightened to use the big toilet with a seat.. any ideas? Also she feeds herself finger foods but when it comes to dinners such as blended pasta/veg etc she will not even attempt to use a spoon and feed herself, she has on the odd occasion attempted to feed herself semolina (smoothe food) and i dunno if its a matter of if she can or can't or if shes just being lazy and knowing that im gonna help her. Any ideas on these two issues i'd appreciate your help. I'd really like to see her be abit more independant, she doesn't have that much interaction with other children outside of school and i know that would probably help if she did. She is how ever improving loads on her speech, shes answering back now.. lol, but she is genuinely a happy little girl and im proud to say shes my little girl. xx
Hey everyone my daughter is 5 n half and has WS and im having no luck potty training her, she seems too big for a potty but is too frightened to use the big toilet with a seat.. any ideas? Also she feeds herself finger foods but when it comes to dinners such as blended pasta/veg etc she will not even attempt to use a spoon and feed herself, she has on the odd occasion attempted to feed herself semolina (smoothe food) and i dunno if its a matter of if she can or can't or if shes just being lazy and knowing that im gonna help her. Any ideas on these two issues i'd appreciate your help. I'd really like to see her be abit more independant, she doesn't have that much interaction with other children outside of school and i know that would probably help if she did. She is how ever improving loads on her speech, shes answering back now.. lol, but she is genuinely a happy little girl and im proud to say shes my little girl. xx
Added: August 26, 2011
Comments:
i have a friend whos little girl has williams syndrome i didnt realy no what it was at 1st but i have now looked it up and lernt lots about what williams syndrome entails and how hard it can be for perants too am soo glad that there is alot of support out there to help anyone who suffers from williams and their families and friends i am lookin into fund raisin to help out more and more studies and help for ppl and families we are hopin to do a walk round our local area to help raise funds it will be a honor to help * * *
i have a friend whos little girl has williams syndrome i didnt realy no what it was at 1st but i have now looked it up and lernt lots about what williams syndrome entails and how hard it can be for perants too am soo glad that there is alot of support out there to help anyone who suffers from williams and their families and friends i am lookin into fund raisin to help out more and more studies and help for ppl and families we are hopin to do a walk round our local area to help raise funds it will be a honor to help * * *
Added: August 25, 2011
Comments:
I have just been told by my genetics doctor today that my son has been diagnosed with Williams syndrome.. I am sure every parent is feeling the same way as I am today when they were given the diagnosis. I have been bombarded with literature and information by the doctor which has not somewhat registered and emotions are somewhat fragile and sensitive any support would be most welcomed.
I have just been told by my genetics doctor today that my son has been diagnosed with Williams syndrome.. I am sure every parent is feeling the same way as I am today when they were given the diagnosis. I have been bombarded with literature and information by the doctor which has not somewhat registered and emotions are somewhat fragile and sensitive any support would be most welcomed.
Added: August 2, 2011
Comments:
Hi, we have a little boy who will be 4 in August and due to start school in September. We have been informed that he will attend mainstream school, he will be in the ssc class in the mornings and "normal" class in the afternoons with 1-1 support, feel pleased he's getting the best of both worlds but also a little apprehensive. Wandered if any other parents are going through this or could give any advice?
Paula
x

Hi, we have a little boy who will be 4 in August and due to start school in September. We have been informed that he will attend mainstream school, he will be in the ssc class in the mornings and "normal" class in the afternoons with 1-1 support, feel pleased he's getting the best of both worlds but also a little apprehensive. Wandered if any other parents are going through this or could give any advice?
Paula
x
Added: July 18, 2011
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Name: Darnell Johnson
From: Plainview Louisiana
E-mail: carlos.johnson88@yahoo.com
I looking for some body to talk to that has the same problem as me. 33 and looking for a friend to talk with.
I was born with Williams Syndrome and i have had heart surgery 7 years a go. So if any body like to give me a call my number 318-491-1441 thats my cell phone.