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Williams Syndrome Guestbook
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Number of entries: 71 Number of pages: 8
1 2 3 4 5 6 Next › Last »
Number of entries: 71 Number of pages: 8
1 2 3 4 5 6 Next › Last »
Comments:
well my little girl ruby is 2 next week she has many issues due to williams syndrome doesnt stop her from been happy and wanted to sit with ANYBODY she not walkin or talking yet
we went to the williams picnic on sunday and it was great cant wait for the christmas party !!!!!!!
well my little girl ruby is 2 next week she has many issues due to williams syndrome doesnt stop her from been happy and wanted to sit with ANYBODY she not walkin or talking yet
we went to the williams picnic on sunday and it was great cant wait for the christmas party !!!!!!!
Added: August 6, 2010
Comments:
Hi What a great site, keep up the good work.
I have been working in mainstream school for 2 years now working with a little boy aged 6 with williams syndrome and what a fantastic 2 years i have had working with him, he is a joy to be around and love everyday of my job seeing how much he has come on in the 2 years.
I would love to chat or help in anyway i can to anybody who wants it.
He has improved so much, he couldnt even write a word when i started working with him and to see him write his name now brought a tear to my eye, what a loving caring person he is. If im feeling a bit down i just have to look at his smiling face and im back to been happy.
All i can say is i love my job working with him

Hi What a great site, keep up the good work.
I have been working in mainstream school for 2 years now working with a little boy aged 6 with williams syndrome and what a fantastic 2 years i have had working with him, he is a joy to be around and love everyday of my job seeing how much he has come on in the 2 years.
I would love to chat or help in anyway i can to anybody who wants it.
He has improved so much, he couldnt even write a word when i started working with him and to see him write his name now brought a tear to my eye, what a loving caring person he is. If im feeling a bit down i just have to look at his smiling face and im back to been happy.
All i can say is i love my job working with him
Added: August 5, 2010
Comments:
Hello my name is Joanne I am the proud grandma to Lily 10 months. Lily lives with her grandad and I, she was diagnosed at 6 months. Lily is doing very well with her motor skills, she's just started crawling. Weaning is a bit more difficult any lumps make her gag and lily is on medication for reflux. Lily has also got a heart defect. I would love to hear from other families in the area.
Hello my name is Joanne I am the proud grandma to Lily 10 months. Lily lives with her grandad and I, she was diagnosed at 6 months. Lily is doing very well with her motor skills, she's just started crawling. Weaning is a bit more difficult any lumps make her gag and lily is on medication for reflux. Lily has also got a heart defect. I would love to hear from other families in the area.
Added: July 1, 2010
Comments:
hi peeps its me kaitlin i live in texas i love haveing this syndrome it rocks college was good i met a couple of friends there i miss hanging out with julie and all the rest of my bffs life is not easy when u have this syndrome some times the truth hurts i got a surprize for u all im going to a recording studio soon im so happy !!!!!!!!!!!!!!!! god has blessed me!!!!!!!! with the best friends i could ever ask for woo hoo im turning 21 soon and going to las vegas im so happy my family has supported me all the way WSA rocks my socks !!!!!
Added: May 18, 2010
Comments:
hi i have a son aged 15 month called tyler with williams, he is very hard work at times throwing him self back and he's not on proper soilds yet because he gag's he aslo has been in alot of pain recently with he's teeth.. he's had he's heart surgery in nov last year at alder hey but has got more surgery to come, would like to hear from other parents with ws
hi i have a son aged 15 month called tyler with williams, he is very hard work at times throwing him self back and he's not on proper soilds yet because he gag's he aslo has been in alot of pain recently with he's teeth.. he's had he's heart surgery in nov last year at alder hey but has got more surgery to come, would like to hear from other parents with ws
Added: May 12, 2010
Comments:
just returned from the Scottish convention, it was our first as our daughter Bethan was only diagnosed last year aged 5. we found the talks a help but most of all swapping info with other parents, would attend again thanks.
just a shame the Icelandic volcano stopped other professionals from attending.
just returned from the Scottish convention, it was our first as our daughter Bethan was only diagnosed last year aged 5. we found the talks a help but most of all swapping info with other parents, would attend again thanks.
just a shame the Icelandic volcano stopped other professionals from attending.
Added: April 19, 2010
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Name: Nicola
From: Glasgow, Scotland
E-mail: nicola.mcgarrity1978@gmail.com
Hi, Our son was diagnosed when he was 5 weeks old. He is now nearly 10 weeks. In his short time with us he has been in hospital 4 times. They have found he has Aortic Stenosis, heart murmur and he has just had a Hernia Operation to name but a few! He is the most gorgeous little boy. I would love to hear from others who can advise on the next steps and the help that may be available.