United Kingdom -
For United Kingdom enquiries only contact:
The Williams Syndrome Foundation (UK)
161 High Street
Tonbridge
Kent TN9 1BX
Tel: 01732 365152
Fax: 01732 360178
Email The Chief Executive: John Nelson
The Federation of European Williams Syndrome (FEWS) can be contacted via their website at www.euwilliams.org.
Click on the FEWS link to the left for information on the European Federation.
See links right for International contact details (including the USA)
International
Please contact us with any dead links or if you have any more details to add.
Argentina -
Contact - Jorge Cufre
Email
Web: http://www.paisvirtual.com/salud/medicina/william (Spanish language)
Asociacion Argentina de Sindrome de Williams (aAsW)
President: Alejandro Monteverde
Email
Web: http://www.welcome.to/aasw
Australia -
Williams Syndrome Family Support Group of Western Australia (Inc)
Williams Syndrome Association of South Australia Inc
Secretary: Mr Rob Hendry
Tel: (08) 9459 3716
Williams Syndrome Family Support Group of South East Queensland
Rebecca Carter
15 Azalea Place
Currimundi
Queensland 4551
Australia
Tel: (07) 5493 1185
Email
Web: www.powerup.com.au/~jeordie
Williams Syndrome Family Support Group (Vic) Inc.
Honorary Secretary: Ron and Ro Noone
49 Montrose Place
Highton
Victoria 3216
Web: http://www.vicnet.net.au/~wsfsg
Williams Syndrome Association of South Australia Inc.
Regional Director: Amanda Strybos
Contact: Amanda Strybos or Mandy Turner
PO Box 247
Salisbury
Adelaide 5108
Australia
Tel: 8258 3867
Email
Williams Syndrome (IHC) Association of New South Wales
Dianne Petrie
c/o Association of Genetic Support of Australasia Inc
66 Albion Street
Surry Hills
New South Wales 2021
Australia
Tel: +61 2 9211 1462
Email
Bangladesh
Abu YMA Akter
House 53, Road 3A
Dhanmondi
Dhaka 1209
Bangladesh
Tel: +88 01913 620693
Email
Belgium -
Afrham Syndrome de Williams (French speaking group)
Contact: Marie Jeanne Dambly (Presidente)
Jean-Marie Pendeville (Secretary)
66 Rue de la Limite 1210 Bruxelles, Belgium
Tel: 02 219 8800
Fax: 02 219 908
Email
Web: http://users.skynet.be/wsa-bel-fr
Williams-Beuren Syndroom v.z.w. (Flemish speaking group)
Contact: Paul & Dominique Pyck-Declerck
Tervuursesteenweg 30
B-3001 Herverlee
Belgium
Tel/Fax: 016 224232
Email
Web: http://www.williamsbeuren.be
Bosnia & Herzegovina
Contact: Edina Bajric-Uzunovic
Brezeanska 5
71000 Sarajevo
Bosnia & Herzegovina
Email
Brazil -
Email: swbrasil@swbrasil.org.br
Website: www.swbrasil.org.br
Canada -
Canadian Association for Williams Syndrome
Diane Reid
Chairperson
CAWS
209 Inverness Park SE
Calgary AB
T2Z 3K6
Tel: 403-257-3581
Email
Web: www.CAWS-CAN.org
Chile
Contact: Marleen Rechsteiner
Tel: +56-2-2495939
Mobile: +56-9-0752631
Email
Denmark -
Williams Syndrome Association of Denmark
V/gitte Petgersen Kildemarken 44
4622 Havdrup
Denmark
Finland -
Contact: Jari-Matti Vuorio
Kettutie 4 A 14
FIN-00800
Helsinki
Finland
Tel: 358-9-789 343 (home)
Tel: 358-9-19140926 (office)
Email
France -
Autour des Williams
10 rue de la Jonquiere
75017 Paris
Tel: +33 (0) 6 88 39 49 07
Web: http://www.autourdeswilliams.org
ASW du Nord de la France
Contact: Pierre Spilliaert (Le President)
Rue de l'Ancien
59760 Grande Sythe
Tel: +33 (0) 3 28 27 94 34
Email
Web: http://www.fraternet.org/williams
ASW Normandie
Contact : M. Sautreuil
209 Rue du Commandant Abadie
76600 LA HAVRE
Tel: +33 (0)2 35 45 71 28
ASW Sud-Est (covering Lyon-Tolouse-Nice)
Helene and Jacy Monti - Secretary General and Treasurer
16, rue Teresa Maxence Chaix
13200 Aries
France
Tel: 04 90 85 18 99
Email
Williams - France/Est
20 Voie du Himbeaumont
F - 88480 ETIVAL-CLAIREFONTAINE
Tel/fax: +33 (0)3 29 41 85 49
Email
Web: http://perso.wanadoo.fr/syndrome_de_williams
Germany -
Bundesverband William-Beuren Syndrom (Germany)
Horst Romm
Danziger Strasse 2a
85748 Garching
Germany
Email
Web: www.w-b-s.de
Hungary -
Hernad u 27
H-1078 Budapest
Hungary
Email
Contacts:
President: Bojtor Zsuzsanna Poganyne
Tel/Fax: 36 1 326 7492 (English/French speaking)
Secretary General: Dr Dora Scheiber
Tel: 36 1 266 1639/2890 (English/Spanish speaking)
Ireland -
c/o Ann Breen
13 Kilgarve Park
Ballinasloe
Co. Galway
Ireland
Tel: 00 353 9096 43247
Email
Web: www.wsai.ie
Israel -
Williams Syndrome of Israel
Contact: Mrs Henriette Allon
Louis Pasteur 5
Tel Aviv
Jaffo
68036
Israel
Tel: 03683 0538
Eitan - Israeli Association of Rare Diseases
Contact: Ayelet Medina
Web: www.eitan-rd.com
Email
Italy -
Cintia Torlonia
Assocociazione Italiana Sindrome di Williams
Le Scuderie Castel Lombardo
375 Via Casale Saint’Angelo
Torre in Pietre 0050
Roma
Italy
Email
(Thanks to Palummo Alberto of Alfa Romeo Avio S.A.p.A. for providing this information).
Japan -
Williams Syndrome Association of Japan
Mr Takeshi Unno
2-27-21 Nokata
Nakano-ku Tokyo 165
JAPAN
Tel/Fax: 03-3388-7488
Sugimoto Masahiko has some documents about WS in Japanese on his homepage at http://www1.u-page.so-net.ne.jp/td5/msugimot/
Email
Macedonia -
Contact: Lela Satovic
UL. Kosta Novakovic 48/3-6
1000 Skopje
Macedonia
Tel: +389 2 2468 737
Email
Mozambique -
Contact: Cristina Johnston
Mobile: 00 258 82 2651100
Netherlands -
Mieke van Leeuwen
Postbus 85276
3508AG Utrecht
Netherlands
Email
New Zealand -
Christina Stilwel
5248B Bush Road
RD2, Ngatea 2852
New Zealand
Email
Website: www.williams-syndrome.org.nz
Norway -
Norsk Forening for WS (Norway)
Erik Andersen
Slettevn. 12
1177 Oslo
Norway
Email
Web: www.williams-syndrom.no
Portugal -
Associação Portuguesa de Portadores de Síndrome de Williams
Rua Dr. José Espírito Santo
Lote 49
Loja 1
1900 Lisboa
Portugal
Tel: +351218371699
Fax: +351218371712
EMail
Web: www.terravista.pt/portosanto/4230
Romania -
Williams Syndrome Association of Romania
Contact person: CAMELIA LAZAR-LIVIERATOU
Address: a. HQ Bd. N. Titulescu, nr 89-91, bl. 9, sc. B, et. 2, ap. 51, sector 1,Bucuresti
Address: b. officeBd. I. Mihalache, nr 35-37, bl 101, sc.B, et. 10, apt.55, sector 1, Bucuresti
Tel/fax: +40.21.2227085
Mobile: +40.723.553035
Email
Website: www.williams-syndrome.ro
Slovac Republic -
Spolocnost Williamsovho Sydrom
Katarina Jarrabkova
Email
South Africa -
Williams Syndrome Assocation of South Africa
PO Box 19113
Tecoma
5214
South Africa
Tel: 084 574 2926 / 043 726 1435
Website: www.williams-syndrome.co.za
Email
CEO: Dries Coetzee
CEO 2nd: Jacques Holtzhausen
Secretary: Magda Coetzee
PRO: Tanja Holtzhausen
Treasurer: Thinus Lourens
Medical Advisor: Ettiene Grassy
Music Therapist: Mikaela Griffiths
Spain -
Asociacion Sindrome Williams A.S.W.
(This is the National WS Association for Spain)
Contact: Alicia Martinez (President)
Avda. Doctor Garcia Tapia. 208-Local 1
28030 Madrid
Tel: 91 413 6227
Fax: 91 510 2261
Email
Asociacion Sindrome de Williams en Soria
Contact: Marina Parra (Presidenta)
C/Sagunto 14 - 4B
42001 Soria
Spain
Tel: 975 22 2167
Fax: 975 22 5929
Swaziland
Contact: Anthony Pitts
PO Box 1169
Matsapha
Swaziland
Tel: +9268 5054856
Email
Sweden -
Williams Syndromforeningen i Sverige
Email
Web: www.williams-syndrom.se
Contact: Nita Lorimer
Iliongr. Q:322
224 71 Lund
Sweden
Tel: +46-(0)46-211 18 95
Email: Nita.Lorimer@home.se
Switzerland -
Manuela Montaldo, Présidente
Seestrandweg 66
3235 Erlach
Switzerland
Tel: 0041 32 338 78 78
Fax: 0041 32 338 70 80
Mobile: 0041 79 660 02 02
Email
Website: www.williams-syndrome.ch
USA -
Williams Syndrome Association Inc
Executive Director: Terry Monkaba
PO Box 297
Clawson
Michigan 480171-0297
USA
Tel: 248 541 3630
Fax: 248 541 3631
Email
Website: http://www.williams-syndrome.org
Zimbabwe -
Although there is not an official Williams Syndrome Association in Zimbabwe, we know of one family who is interested in hearing from other parents of WS children and professionals in that Country.
Her contact details are:
Cristina & Mark Johnston
P.O.BOX BW 1379
Borrowdale
Harare
Zimbabwe
Tel: 00 258 82 2651100
Email
