United Kingdom
For United Kingdom enquiries only contact:
The Williams Syndrome Foundation (UK)
161 High Street
Tonbridge
Kent TN9 1BX
Tel: 01732 365152
Fax: 01732 360178
Email The Chief Executive: John Nelson
The Federation of European Williams Syndrome (FEWS) can be contacted via their website at www.euwilliams.org.
Click on the FEWS link to the left for information on the European Federation.
See links right for International contact details (including the USA)
International
Please contact us with any dead links or if you have any more details to add.
Argentina - Back
Contact - Jorge Cufre
Email
Web: http://www.paisvirtual.com/salud/medicina/william (Spanish language)
Asociacion Argentina de Sindrome de Williams (aAsW)
President: Alejandro Monteverde
Email
Web: http://www.welcome.to/aasw
Australia - Back
Williams Syndrome Family Support Group of Western Australia (Inc)
Williams Syndrome Association of South Australia Inc
Secretary: Mr Rob Hendry
6 Teak Way
Maddington W.A. 6109
Tel: (08) 9459 3716
Williams Syndrome Family Support Group of South East Queensland
Rebecca Carter
15 Azalea Place
Currimundi
Queensland 4551
Australia
Tel: (07) 5493 1185
Email
Web: www.powerup.com.au/~jeordie
Williams Syndrome Family Support Group (Vic) Inc.
Honorary Secretary: Ron and Ro Noone
49 Montrose Place
Highton
Victoria 3216
Web: http://www.vicnet.net.au/~wsfsg
Williams Syndrome Association of South Australia Inc.
Regional Director: Amanda Strybos
Contact: Amanda Strybos or Mandy Turner
PO Box 247
Salisbury
Adelaide 5108
Australia
Tel: 8258 3867
Email
Williams Syndrome (IHC) Association of New South Wales
Dianne Petrie
c/o Association of Genetic Support of Australasia Inc
66 Albion Street
Surry Hills
New South Wales 2021
Australia
Tel: +61 2 9211 1462
Email
Belgium - Back
Afrham Syndrome de Williams (French speaking group)
Contact: Marie Jeanne Dambly (Presidente)
Jean-Marie Pendeville (Secretary)
66 Rue de la Limite 1210 Bruxelles, Belgium
Tel: 02 219 8800
Fax: 02 219 908
Email
Web: http://users.skynet.be/wsa-bel-fr
Williams-Beuren Syndroom v.z.w. (Flemish speaking group)
Contact: Paul & Dominique Pyck-Declerck
Tervuursesteenweg 30
B-3001 Herverlee
Belgium
Tel/Fax: 016 224232
Email
Web: http://www.williamsbeuren.be
Brazil - Back
Email: swbrasil@swbrasil.org.br
Website: www.swbrasil.org.br
Canada - Back
Canadian Association for Williams Syndrome
Diane Reid
Chairperson
CAWS
209 Inverness Park SE
Calgary AB
T2Z 3K6
Tel: 403-257-3581
Email
Web: www.CAWS-CAN.org
Chile
Contact: Marleen Rechsteiner
Tel: +56-2-2495939
Mobile: +56-99-0752631
Email
Denmark - Back
Williams Syndrome Association of Denmark
V/gitte Petgersen Kildemarken 44
4622 Havdrup
Denmark
Finland - Back
Contact: Jari-Matti Vuorio
Kettutie 4 A 14
FIN-00800
Helsinki
Finland
Tel: 358-9-789 343 (home)
Tel: 358-9-19140926 (office)
Email
France - Back
ASW Ile de France (Paris and suburb)
Contact: Mme Dutacq
BP 50
78362 MONTESSON CEDEX
Tel: +33 (0) 1 39 52 06 75
ASW du Nord de la France
Contact: Pierre Spilliaert (Le President)
Rue de l'Ancien
59760 Grande Sythe
Tel: +33 (0) 3 28 27 94 34
Email
Web: http://www.fraternet.org/williams
ASW Normandie
Contact : M. Sautreuil
209 Rue du Commandant Abadie
76600 LA HAVRE
Tel: +33 (0)2 35 45 71 28
ASW Sud-Est (covering Lyon-Tolouse-Nice)
Helene and Jacy Monti - Secretary General and Treasurer
16, rue Teresa Maxence Chaix
13200 Aries
France
Tel: 04 90 85 18 99
Email
Williams - France/Est
20 Voie du Himbeaumont
F - 88480 ETIVAL-CLAIREFONTAINE
Tel/fax: +33 (0)3 29 41 85 49
Email
Web: http://perso.wanadoo.fr/syndrome_de_williams
Germany - Back
Bundesverband William-Beuren Syndrom (Germany)
Horst Romm
Danziger Strasse 2a
85748 Garching
Germany
Email
Web: www.w-b-s.de
Hungary - Back
Hernad u 27
H-1078 Budapest
Hungary
Email
Contacts:
President: Bojtor Zsuzsanna Poganyne
Tel/Fax: 36 1 326 7492 (English/French speaking)
Secretary General: Dr Dora Scheiber
Tel: 36 1 266 1639/2890 (English/Spanish speaking)
Ireland - Back
c/o Ann Breen
13 Kilgarve Park
Ballinasloe
Co. Galway
Ireland
Tel: 00 353 9096 43247
Email
Web: www.wsai.ie
Israel - Back
Williams Syndrome of Israel
Contact: Mrs Henriette Allon
Louis Pasteur 5
Tel Aviv
Jaffo
68036
Israel
Tel: 03683 0538
Eitan - Israeli Association of Rare Diseases
Contact: Ayelet Medina
Web: www.eitan-rd.com
Email
Italy - Back
Cintia Torlonia
Assocociazione Italiana Sindrome di Williams
Le Scuderie Castel Lombardo
375 Via Casale Saint’Angelo
Torre in Pietre 0050
Roma
Italy
Email
(Thanks to Palummo Alberto of Alfa Romeo Avio S.A.p.A. for providing this information).
Japan - Back
Williams Syndrome Association of Japan
Mr Takeshi Unno
2-27-21 Nokata
Nakano-ku Tokyo 165
JAPAN
Tel/Fax: 03-3388-7488
Sugimoto Masahiko has some documents about WS in Japanese on his homepage at http://www1.u-page.so-net.ne.jp/td5/msugimot/
Email
Macedonia
Contact: Lela Satovic
UL. Kosta Novakovic 48/3-6
1000 Skopje
Macedonia
Tel: +389 2 2468 737
Email
Mozambique
Contact: Cristina Johnston
Mobile: 00 258 82 2651100
Netherlands - Back
Mieke van Leeuwen
Postbus 85276
3508AG Utrecht
Netherlands
Email
New Zealand - Back
Christina Stilwel
5248B Bush Road
RD2, Ngatea 2852
New Zealand
Email
Website: www.williams-syndrome.org.nz
Norway - Back
Norsk Forening for WS (Norway)
Lisen Mohr
Kjetil Orbeck
Ovre Langasvei 3
0880 Oslo
Norway
Email: Lisen.Julie.Mohr@frambu.no
Portugal - Back
Associação Portuguesa de Portadores de Síndrome de Williams
Rua Dr. José Espírito Santo
Lote 49
Loja 1
1900 Lisboa
Portugal
Tel: +351218371699
Fax: +351218371712
E-Mail: appsw@mail.pt
Web: www.terravista.pt/portosanto/4230
Romania - Back
Williams Syndrome Association of Romania
Contact person: CAMELIA LAZAR-LIVIERATOU
Address: a. HQ Bd. N. Titulescu, nr 89-91, bl. 9, sc. B, et. 2, ap. 51, sector 1,Bucuresti
Address: b. officeBd. I. Mihalache, nr 35-37, bl 101, sc.B, et. 10, apt.55, sector 1, Bucuresti
Tel/fax: +40.21.2227085
Mobile: +40.723.553035
E-mail: camelia_livieratou@yahoo.com
Website: www.williams-syndrome.ro
Slovac Republic - Back
Spolocnost Williamsovho Sydrom
Katarina Jarrabkova
Email: ksbkkaja@savba.sk
South Africa - Back
The WSASA
Dries Coetzee
CEO of WSASA
PO Box 19113
Tecoma
5214
South Africa
Tel: 027 043 726 1435
Email: ngnoord@net4u.co.za
Spain - Back
Asociacion Sindrome Williams A.S.W.
(This is the National WS Association for Spain)
Contact: Alicia Martinez (President)
Avda. Doctor Garcia Tapia. 208-Local 1
28030 Madrid
Tel: 91 413 6227
Fax: 91 510 2261
Email: sidromewilliams.org
Asociacion Sindrome de Williams en Soria
Contact: Marina Parra (Presidenta)
C/Sagunto 14 - 4B
42001 Soria
Spain
Tel: 975 22 2167
Fax: 975 22 5929
Asociacion Valenciana Sindrome de Williams
(Covering Castellon, Alicante and Valencia)
President: Tomas Monzo Gonzalez
Plaza Alqueria Nova, 18, 49a,
46014 Valencia
Spain
Tel/Fax: +34 963833547
Email: avsw@wanadoo.es
Web: http://perso.wanadoo.es/avsw/
Sweden - Back
Williams Syndromforeningen i Sverige
Email: w-s@mail.databasen.se
Web: www.williams-syndrom.se
Contact: Nita Lorimer
Iliongr. Q:322
224 71 Lund
Sweden
Tel: +46-(0)46-211 18 95
Email: Nita.Lorimer@home.se
Switzerland - Back
Manuela Montaldo, Présidente
Seestrandweg 66
3235 Erlach
Switzerland
Tel: 0041 32 338 78 78
Fax: 0041 32 338 70 80
Mobile: 0041 79 660 02 02
Website: www.williams-syndrome.ch
Email: manuela.montaldo@bluewin.ch
USA - Back
Williams Syndrome Association Inc
Executive Director: Terry Monkaba
PO Box 297
Clawson
Michigan 480171-0297
USA
Tel: 248 541 3630
Fax: 248 541 3631
Email: TMonkaba@williams-syndrome.org
Website: http://www.williams-syndrome.org
Zimbabwe - Back
Although there is not an official Williams Syndrome Association in Zimbabwe, we know of one family who is interested in hearing from other parents of WS children and professionals in that Country.
Her contact details are:
Cristina & Mark Johnston
P.O.BOX BW 1379
Borrowdale
Harare
Zimbabwe
Tel: 00 263 4 495896
Email: cristinajohnston@yahoo.co.uk
