Guidelines

Professionally written guidelines published by the Williams Syndrome Foundation:

Guidelines for Employers & Supervisors - Adults with Williams Syndrome

Williams Syndrome Clinical Management Guidelines

Help and Support for Families

The Foundation finds many ways to help Williams syndrome children and their families. There are Regional Contacts around the country - all parents of a Williams Syndrome child - who keep in touch with local families, visit new contacts, arrange meetings and organise fund-raising events.

The Foundation organises annual national meetings as well as local gatherings for families.

The Foundation pays for Group Holiday weeks for unaccompanied adults and also families (self-catering) every year. In 2010/11 these amounted to over £50,000 and expenditure increases every year. This is one of the most beneficial ways in which the Foundation can help families.

The Foundation acts as an information and advisory service and keeps parents in touch with newsletters and half-yearly magazines. It also keeps a register of all known Williams Syndrome cases and provides access for professionals to assist research.

Disclaimer: The information provided on this website is intended to give general information about Williams Syndrome. The information is not intended to be relied upon or to be a substitute for medical or legal advice. Accordingly, we do not accept any liability for any damages or loss which may arise from reliance upon this information.