Thank you for visiting the Williams Syndrome Foundation website.

We aim to be the first point of contact for individuals with Williams Syndrome, their families and professionals needing support and information regarding the Syndrome. We actively support research into the educational, behavioural, social, scientific and medical aspects of the Syndrome. We will seek to organise our financial and personnel resources so as to achieve our mission on a sustainable basis.

I am a Parent/Carer

My son Ethan was diagnosed with Williams Syndrome when he was 13 weeks old and the support and information that the WSF have provided since then has been invaluable. read more

I am a Professional

I first became involved with the Williams Foundation as a paediatric registrar in London. Over the subsequent 35 years I have met, talked to and enjoyed the company of many hundreds of children and adults with Williams Syndrome ... read more

I am a WS Person

Hi my name is Katy, I am 25 and have Williams Syndrome. read more

I am a Fundraiser

I have no experience at all as a professional fundraiser, but what I have learnt is that people are generous and that they love to donate to a personal cause. read more

News & Events (read all news)

Cambs, Norfolk, Suffolk Meeting

Nikki would like to invite her members to join her on Saturday, 19 September from 1.30pm to 4.30pm at her house for an informal get together.  Nurse Wendy will also be attending, so if you have any questions for her this is an ideal opportunity to take her to one side for a private chat. For more details contact Nikki at cambsnorf...

New Research Project

There is a new exciting research project being led by Prof. Patricia Howlin, Prof. Chris Oliver and Dr Jane Waite investingating emotions and behaviour in Williams Syndrome.  The project will be run by Rachel Royston (doctoral researcher). Read the attached for more information.

New Research Project

Exploring the Musicality of Children and Young People with Williams Syndrome My name is Beth Frost. I am a primary school teacher who supports children with special educational needs and also a research student.  I am leading a large-scale research project at the UCL Institute of Education UK into the musical lives of children and...

Learning Disabilities Mortality Review

The national Learning Disabilities Mortality Review (LeDeR) Programme’s steering group is looking for a family member to join the LeDeR Multiagency Advisory Board alongside Vicki Raphael (see The attached invitation gives back ground and specific information about the review and the Mult...