Thank you for visiting the Williams Syndrome Foundation website.

We aim to be the first point of contact for individuals with Williams Syndrome, their families and professionals needing support and information regarding the Syndrome. We actively support research into the educational, behavioural, social, scientific and medical aspects of the Syndrome. We will seek to organise our financial and personnel resources so as to achieve our mission on a sustainable basis.

I am a Parent/Carer

My son Ethan was diagnosed with Williams Syndrome when he was 13 weeks old and the support and information that the WSF have provided since then has been invaluable. read more

I am a Professional

I first became involved with the Williams Foundation as a paediatric registrar in London. Over the subsequent 35 years I have met, talked to and enjoyed the company of many hundreds of children and adults with Williams Syndrome ... read more

I am a WS Person

Hi my name is Katy, I am 25 and have Williams Syndrome. read more

I am a Fundraiser

I have no experience at all as a professional fundraiser, but what I have learnt is that people are generous and that they love to donate to a personal cause. read more

News & Events (read all news)

Say Hello Thank You

We would like say a huge thank you to everyone for their tremendous support of our first National Say Hello Day for Williams Syndrome.  Thank you also for any money you have raised on our behalf and for donations received via CAF Donate.  Our official thanks will follow in due course.  Thank you!

GP needed for Professional Advisory Panel

Further to the retirement of Dr Mike Wolfman from the WSF Professional Advisory Panel, we are looking for a GP to join the Panel. Duties will involve attending 1 or 2 meetings a year and assisting in guiding the WSF on research approval and medical enquiries and resources.  Directly related expenses will be met upon receipts. ...


Neil Maxwell would like your support on behalf of Williams Syndrome in respect of his 300 mile cycle challenge from Bury St Edmunds to Southend.  More details are on the attached flyer and he has set up a JustGiving page to make donations which is www. justgiving/ 

Picnic 2015

It is with great sadness that the Trustees have taken the difficult decision not to hold a London picnic this year. The reason for this is that they feel, having considered their duties and responsibilities to the members - and particularly the vulnerable members, they cannot meet the standard of care that should be expected of them by...