Thank you for visiting the Williams Syndrome Foundation website.

We aim to be the first point of contact for individuals with Williams Syndrome, their families and professionals needing support and information regarding the Syndrome. We actively support research into the educational, behavioural, social, scientific and medical aspects of the Syndrome. We will seek to organise our financial and personnel resources so as to achieve our mission on a sustainable basis.

I am a Parent/Carer

My son Ethan was diagnosed with Williams Syndrome when he was 13 weeks old and the support and information that the WSF have provided since then has been invaluable. read more

I am a Professional

I first became involved with the Williams Foundation as a paediatric registrar in London. Over the subsequent 35 years I have met, talked to and enjoyed the company of many hundreds of children and adults with Williams Syndrome ... read more

I am a WS Person

Hi my name is Katy, I am 25 and have Williams Syndrome. read more

I am a Fundraiser

I have no experience at all as a professional fundraiser, but what I have learnt is that people are generous and that they love to donate to a personal cause. read more

News & Events (read all news)


Butlins Minehead on 8-10 July 2016.  Confirmation of forms received will be sent by email if we have your address or by post if not. Please let us know if you have applied and have not yet received a confirmation - please do check your emails.  Please let us know if you cannot print off your email confirmation and n...

Trevanion Holidays 2016

As in previous years, we would like to advise all families with a WS member aged 18 or over of the details of 2016 supported holidays at Trevanion House in Cornwall.   To be eligible to apply for a holiday your family membership subs must be paid up to date. Trevanion holidays are activity holidays, which are fun, adve...

Awareness Day 2016

We have set a date for our 2nd Awareness Day, so put Friday, 20 May 2016 in your diaries. We want it to be even bigger and better than our inaugural "Say Hello!" event and this time you can help make that happen. We are asking you - our members - to come up with ideas for a new slogan for next year's event.  Somet...

2016 Xmas Card Selection

Please find attached this year's Williams Syndrome Christmas card brochure and order form.  Many of you have supported the Williams Syndrome Foundation by using our Christmas cards instead of commercially available cards in the past.  As a small charity for a rare condition, your help is invaluable. Sending a Will...